This might seem like a case of "locking the barn door...", but I'm quite 
interested in any new discoveries about this disease in the past couple of 
years.
In November of 1993, our 21-year-old daughter, who seemed quite healthy as of 
that summer, died of this disease. She had a varitey of symptomes, but the 
doctors treated each symptom individually, rather than as a systemic problem.
 
By the time she was admitted to the hospital, for "the flu", to be rehydrated 
overnight, it was too late. She lived in the ICU for nearly six weeks.
We agreed to (actually requested) an autopsy, in hope that it would add to 
the fund of information and perhaps help others in the future.
Naturally, we miss her terribly and we pray that this horrible malady is 
wiped out soon. I would appreciate any up-to-date information or comments.
(We do not blame the doctor, even though several people suggested that we sue 
for malpractice, since he didn't recognize the disease. That is nonsense. He 
is human, like all of us. His knowledge is finite. We have been led to 
understand that there are only about 25 cases a year in the U.S.. He had 
never seen a case and the hospital had never seen a case. How can we blame 
him?)
Thanks for your help.
Dick Hafer
--- Maximus/2 3.01
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