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echo: fibrom
to: ANN COOK
from: LESLIE PARKER
date: 1995-02-14 19:23:00
subject: Polio History

Hello Ann!
In a message to Leslie Parker  Ann Cook wrote:
AC> When PPS started for me it was about 11 years ago. But when I went to
AC> the Drs. They told me I had menapause, change of life...all kinds of
AC> things. I finally went to a PPS Clinic in Dallas and that's went I found
AC> out about PPS and that I had it...I thought that I was losing my mind
AC> before they told me about the PPS. Now at least I can deal with it and
AC> know that I am not alone in the problem. All of us here have it to one
AC> degree or another. So jump on in and ask, yell, fuss, do whatever you
AC> think that you need from us...We are here for you....Hoping to hear a
AC> lot from you so come on and join the group....Here's a {HUG} use it if
AC> you need it and if you don't then pass it on to someone that does....{:)
Sorry I've taken so long to respond, but I've been occupied with
other things lately.
The first sign of PPS I noticed was frequent and enduring fatigue
when I worked too long. At the time, about 1986, I was working
four hours a day in a computer store. If I had to work longer to
cover another employee who was off, or we were especially busy, I
found I had difficulty breathing (comparatively speaking) and I
was short of breath and very tired for the rest of the day. At
the time, I was using a respiratory only when lying down, and
after a night's rest, I was usually better the next day. This
problem has accompanied me ever since, and has resulted in 100%
disability.
The second symptom I noticed was a weakening in my right knee. I
haven't had to start wearing braces again, but I don't dare take
its support for granted. When walking, I have to think about it
and exert myself to keep from going down.
And recently I'm discovering my hand is a little less cooperative
all the time; I have to concentrate and go slowly with it. Being
one-handed, this seems like the realization of my worst nightmares.
But enough of the dark stuff; I'm finding myself at ease with my
fate for the first time in my life. I had a very near death
experience about two years ago, and I'm learning that life truly
is what you make of it. I have my friends and family, books and
music, and my writing (though much less of it lately; I no longer
feel the need to prove myself). I've even learned to appreciate
rain-laden Oregon winters, which is quite an accomplishment for a
native Oregonian; we're all sun worshippers, but I think all the
rain drumming on our heads has dimmed our wits, because we stay
and wallow in our misery and the mud.
Take care,
Les
 * WCE 2.0/2360 * Sometimes it is smarter to be stupid.
--- WILDMAIL!/WC v4.12 
---------------
* Origin: Ecclesiastes' Echo Chamber (1:356/5.0)

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