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echo: grand_rounds
to: LORI SMITH
from: PAUL MICHAELSON
date: 1996-05-23 19:55:00
subject: Neuro-muscular degenerati

LORI, 
 
 LS> I would like any information available on neuro-muscular degenerative  
 LS> diseases. A ver dear friend is suffering from such a disease; from 
 LS> what she  
 LS> has told me, her own immune system is eating away at the myelin oating 
 LS> on her  
 LS> nerves, leading to a burning sensation in the initial stages followed 
 LS> by weakness and loss of strength in the limbs. Currentl, she is still 
 LS> able to stand and walk short distances, but must use her wheelchair more 
 LS> and more 
 LS> often. The specific disease she has is  related to lupus. I'm not sure 
 LS> of the name/spelling here, but it's called something like 'neuromyalgia' 
 LS> or 'fibromyalgia'. Please send any info you can!!! 
 
This sounds like neuromyalgia not fibromyalgia, and you might be able to 
find out more about it on the MULT-SCLEROSIS echo, since it is very much 
like multiple sclerosis.  Ann on that echo has it, I think. 
 
Best of luck to her, and take care. 
Paul 
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