DH> In November of 1993, our 21-year-old daughter, who 
 DH> seemed quite healthy as of that summer, died of this 
 DH> disease. She had a varitey of symptomes, but the 
I'm so sorry for your loss.
 DH> We agreed to (actually requested) an autopsy, in hope 
 DH> that it would add to the fund of information and 
 DH> perhaps help others in the future.
I wish that everyone felt the way you did, and hope that it adds to our 
knowledge.
 DH> Naturally, we miss her terribly and we pray that this 
 DH> horrible malady is wiped out soon. I would appreciate 
 DH> any up-to-date information or comments.
The reference librarians at your local public library may be able to help you 
find an organization, publication, etc. that would be helpful.
  
 DH> (We do not blame the doctor, even though several people 
 DH> suggested that we sue for malpractice, since he didn't 
 DH> recognize the disease. That is nonsense. He is human, 
You're very understanding.
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