Dick, the information below came from NORD's Rare Disease database which can 
be searched on the web.  If you'd like, I can also upload a file to you 
containing some citations from Medline.  Also, if you'd like to pursue a 
contact with NORD, I can go back out on the web and get some addresses for 
you, including the place from which to order the report.
 
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Report Name:  Granulomatosis, Wegener's
Report Number:  270
 
Abstract (General Discussion):  The information contained in the Rare
Disease Database (RDB) is provided for educational purposes only.  It
should not be used for diagnostic or treatment purposes.  If you order
the full text version of this report from NORD, you can contact the
agencies listed in the Resources section for more detailed information
and avenues to support.  In addition, your personal physician may be
able to provide details specific to your case.
 
Wegener's Granulomatosis is an uncommon collagen vascular disorder that
begins as a localized inflammation of the upper and lower respiratory
tract mucosa, and usually progresses into generalized inflammation of
the blood vessels (vasculitis) and kidney (glomerulonephritis).
 
Synonyms:
 
It is possible that Granulomatosis, Wegener's may not be the name that
you expected.  Your physician may have given you another name for this
disease.  Please check the synonyms listed below to find other names
for this specific disorder.
 
Necrotizing Respiratory Granulomatosis
Pathergic Granulomatosis
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