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echo: fibrom
to: JAMES HARDING
from: LD WALKER
date: 1995-09-29 11:51:00
subject: PPS Exercise

Hi James! Glad you found the echo, I have been here on and off for about
six months I think (never could remember dates).  Although I am one of
the very fortunate Polio survivors, in the last few years I was having
an extreme problem with fatigue.  I'm 55 now and had the polio at age
13.
Information posted in this echo enabled me to learn a great deal about
the fatigue problem and I have had very good results with managing the
fatigue since.  Taking the advice of several people here, I learned to
rest more frequently and avoid the very heavy physical activity I
sometimes exposed myself to.  This has resulted in my actually having
much more time that I can actually use to good advantage.
Previously I had been in a vicious circle of work, play and fatigue to
the point of collapse.  After modifying my lifestyle considerably as
described above, I feel almost normal most of the time.
I, unlike many, don't seem to have lost much strength at this point, but
definitely have lost endurance, so plan my activities accordingly.
I was diagnosed as having PPS at the Dallas Rehab Clinic in Dallas,
Texas a couple of uears ago.  I still exercise MODERATELY and feel
better than with no exercise at all, but this apparently must be
determined on an individual basis considering each patient's condition.
Keep posting, the Moderator Tom McKeever recently posted a message in
the Cardiac echo which he also moderates noting that distribution of the
echo could be lost if activity is too low.  I was not previously aware
of that, and many others like myself, who lurk a lot and post a little
probably are not aware either.
Good luck with finding information that can help you.
                                         LD Walker
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