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| subject: | When George is a disorde |
Barbara McNay wrote to George Pope, "When is it a disorder whe" on 10-23-05
20:13
> On (22 Oct 05) Cindy Haglund wrote to WAYNE
> CHIRNSIDE...
> CH>
> CH> I learned two things from this article.
> CH>
> CH> 1. The Deaf (born deaf) community do not regard themselves ad
> CH> 'disabled'...
> I had a senior neighbour who watched a news program on
> the C.I. and
> interviewed some mothers who said they would not get
> it for their deaf
> child, because they didn't want to deny their child
> "their deaf
> community" -- my friend's view was that the parents
> were making an evil
> crime of denying their children the gifts, for
> example, of
> knowing/appreciating music.
> Certainly being deaf, if the world is willing/able to
> care enough about
> them as being fellow citizens in human society to
> communicate with them!
> ("all you-all")
> CH> 2. Besides the FACT CI's do not restore full hearing (tone wise
> CH> required for speech indentation for example)- in all individuals and
> CH> I will tell you another fact: silence is preferable to noise...
> CH> besides these two 'shuts them up every time" facts CI's can pose a
> CH> danger (read: serious injury) to the wearer should they receive a blow
> CH> to
> CH> the head.
> But isn't it worth it, if it helps SOME get normal
> hearing, so they can:
BM> But this is the point you've missed, George. The hearing afforded by
BM> CI's is not at all normal; it's a last resort and a poor substitute
BM> for the real thing. Cindy says "tone," where the
BM> terminology I would use is "frequency." There are times
BM> when I hear people speak, but it sounds nothing to me like
BM> a voice, not to mention that it's unintelligible. Above a
BM> certain frequency, music is just noise to me, because at
BM> that point, I can't distinguish among frequencies. This
BM> relates to Cindy's statement that "silence is preferable to
BM> noise."
> -know & appreciate "music"?
> -have the ability to hear warnings of danger (eg.
> accellerating car
> around the corner, barking dog on the move,
> rattlesnake rattle, etc.)
> -be able to more easily communicate with more people
> using all the
> abilities that God/Nature/Evolution has bestowed on
> the human creature
BM> All of the above, then, are things that many people with
BM> defective hearing can't do, sometimes even with
BM> amplification.
> It's like trying to communicate with dolphins, in
> their environment --
> we're crippled -- if it was important to communicate
> with them we'd have
> to overcome our disabilities of being land-bound, and
> mute/deaf, as far
> as dolpin-style communication goes!)
> Okay, I know what you're thinking(I think): f***
> communicating with the
> dolphins; I'll live my life without it and be
> perfectly happy!"
> But born-deaf children aren't as separated from
> hearing society as
> we-all are from dolphins
BM> I disagree, here. I think they probably are, unless
BM> society makes diligent and persistent efforts to
BM> communicate "tries to communicate with the dolphins"--which
BM> it too often does not.
> Society is stronger (collectively & individually) with
> greater
> unity(through communication), so we each have a
> greater opportunity to
> achieve our highest potential(cf. Maslow's Hierarchy
> of Needs)!
> Let's say you get injured somehow(bit by a
> rattlesnake, e.g.)
> We NEED the industrialization we have to have a means
> to contribute so
> as to earn some sort of recompense to provide for
> necessities (food,
> shelter, medical, etc.)
> Doesn't it stand to reason that the easier it is, the
> higher we can go
> in our paths?
> Who can achieve greater success climbing a mountain?
> a) s/he who climbs the cliffs straight up (without
> equipmint/training)
> b) s/he who does the same, but with proper equipment/
> training
> c) s/he who follows the nicely marked hiking trail
> that meanders around
> the worst obstacles
> d) s/he who is dropped off at the top by helicopter.
> If the goal is to reach the top, "d" clearly wins,
> because "D" ably
> overcame all disabilities.
> EVERYBODY has disabilities; but society defines some
> as more
> overt/problematic than others, but the fact remains
> that ALL have them!
> A friend of mine was in a local mall having a
> smoke(back in the day!)
> and saw a young girl in a wheelchair who was a
> quadruple amputee;
> Heather, naturally, had a first reaction, internally,
> of "awwww, what a
> darn shame for someone so young & pretty!"
> Well, it must have showed somehow, because this girl
> wheels herself over
> right in front of Heather and says, "Don't you DARE
> feel sorry for me! I
> *KNOW* what MY disability is -- what's YOURS?"
> Heather, instead of getting offended, allowed that to
> sink in and
> thought about it all that day, and became a
> better(more enlightened)
> person because of it -- she shared it with us later
> that night, and I,
> too, have become more enlightened because of it (I
> didn't experience
> what Heather did, but through the miracle of equitable
> clear
> communication I could learn the same lessons/values as
> she did!)
> CH> This info needs to be known by the general public. So when they meet a
> CH> latent deaf/deaf or HOH (hard of hearing) person they might THINK
> CH> before
> CH> brightly well intentionally bringing the subject up. ((Especially to a
> CH> born deaf ("DEAF" ) person. You may as well stick
your hand into hot
> CH> fire...
> CH> Do us all us hearing impaired persons a favor. Don't. We already KNOW.
> Not all do -- there are mobility-challenged people in
> our society who
> are unaware that there are wheelchairs/scooters, and
> these are FAR more
> well-known than C.I.s!
> I think there's a dual responsibility:
> 1) on the part of the caring hearing person making
> sure the born-deaf
> knows about all options available, to STFU quickly if
> the other's
> response is anything but open!
BM> George, it's reasonable to assume that children are taken to doctors by
BM> their parents, and it's reasonable to assume that adults
BM> (especially if they tell you they hear poorly or were born
BM> with poor hearing) know what, if any, options are
BM> available. It's offensive and presumptious for anybody to
BM> walk up to a person with hearing problems and start
BM> "informing" them of options available. Most adults consult
BM> doctors occasionally, and these doctors would be able to
BM> make an intelligent assesment of the nature of their
BM> patient's hearing. If something new came up on the
BM> horizon, *the patient's own physician(s)*, regardless of
BM> his specialty, would know whether it might be applicable to
BM> that patient, and tell him so. Everybody else, the man on
BM> the street, the coworker, etc., is just a sidewalk
BM> superintendent.
How many people had laser surgery under the advice of a physician, and
are now hitting the mid-life stretch? I've heard even tri-focal lenses
can't restore their vision, and as near-sighted as they used to be,
they are twice the amount far-sighted now.
> 2) on the part of the born-deaf confronted by a well-
> meaning person, to
> politely/civilly acknowledge their intent to be
> helpful. . .
BM> It gets old really fast, especially if they keep making an issue of it.
Like that person that attempts to wrestle the door from you to 'help',
how many times have I been viewed with scorn because I will not
consider, or press for a hip replacement?
The hip *joint* is not my problem, but a recipient of abuse. Maybe,
when my hip joint has taken as much abuse as it can, THEN a titanium
replacement might do me some good. Until then, it would be just
another useless procedure. Well, useless to me anyway.
> I know people in wheelchairs who DEMAND to be allowed
> to go first
> (elevators, lineups, bus lineups, etc.) but I don't --
> I know that it's
> the social convention that I be allowed priority use
> of elevators, but I
> recognize that they're public facilities, and if I'm
> not first in line,
> then I may well have to wait my turn!
> In lineups at the grocery store/etc. I tend to
> offer(insist sometimes)
> for standing seniors to go ahead of me (I remember how
> difficult/tiring/painful it was for me, when walking
> with a cane to wait
> too long in lineups!)
> I will also usually offer/insist that ladies go ahead
> of me (just
> because I'm in a wheelchair doesn't mean I can't/
> shouldn't be a
> gentleman!)
> CH> I'm working on a witty comeback for next time. Any suggestions?
> CH> George?
> CH> you're my best bet with witty comebacks! :)
> CH>
> CH> How about...(someone Innocently asks : "have you heard of Cochlear
> CH> implants..... "Why yes and have you heard of frontal
lobe implants?"
> CH> 7Oh something like that...
Maybe Cindy needs to retort, "No, I can't hear a thing!"
> Years ago, I was visiting one of those little store-
> front type community
> churches (happened to be of the "Charismaniac"
> variety) and I was
> walking with my cane. A sweet lady asked me if she
> could pray for me, I
> thanked her and acceded -- I'm sure her doing so made
> her feel good for
> the day, and what the hell, it didn't do squat to
> me(or FOR me, but
> whatever.. *G*)
> Well, a week or two later I was back again visiting,
> and this same lady
> comes up to me, rather upset with me, because I wasn't
> healed
> (apparently my limping called into question her faith/
> etc.) so she
> starts lighting into me about how my weak faith has
> left me crippled,
> and unless I believed properly, I was going to STAY
> crippled.
> Well, I know this type -- and I knew I was only the
> current victim of
> her ignorance/insecurity, and that many others
> wouldn't be as able as I
> to withstand it without psychological/emotional
> damage, so I turned on
> the anger(just a WEE!) and turned on HER:
> "Listen, lady, maybe you better take some classes &
> READ your Bible
> instead of allowing it to collect dust so it can be
> showed off to your
> guests how GOOD you are in having it out in the open!
> Maybe you recall
> a sermon where it was read/taught that Jesus said when
> you pray, pray
> BELIEVING, and it WILL BE DONE according to how you
> ask! Do NOT attempt
> to condemn ME because YOUR faith was too weak to heal
> me -- what are you
> trying to do? Jerk me around, lift up my hopes for
> nothing? You are
> blaspheming the Lord when you do that!"
BM> Do you realize that this is analagous to the behavior of
BM> people who want to bring you up to date on all the latest
BM> treatments? Your lack of faith, your unwillingness to have
BM> surgery, etc.
Some of us have been bitten once, and are now twice shy.
... Women who seek to be equal to men, lack ambition.
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