Greetings, All!!
Here is a collection Mail-Clips regarding PPS Symptoms.. Quite long..
Tom
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Msg : 681 Written : 06/18/95 19:19
From : A.ZELMER@CQU.EDU.AU Status : Pvt Rcd RcA
To : TOM MCKEEVER
Subj : Re: Personality Traits in PPMA - Longish posting
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From: Amy Zelmer
To: Multiple recipients of list POLIO
Date: Mon, 19 Jun 1995 09:19:11 +1000
Subject: Re: Personality Traits in PPMA - Longish posting
Responding to Laura Young's request of 18 June/95
Here are a few references which I've accumulated on the topic. You should
be able to access the original articles through your university -- in fact
you may have these already.
| AUTHOR: Kuehn AF; Winters RK
| TITLE: A study of symptom distress, health locus of control, and
| coping resources of aging post-polio survivors.
| SOURCE: Image J Nurs Sch (GG1), 1994 Winter; 26 (4): 325-31
| ABSTRACT: Nearly one-half of the estimated 1.63 million American
| patients who survived the polio epidemics of the 1940s and
| 1950s are re-experiencing symptoms of the acute illness.
| This exploratory study of 125 aging post-polio survivors
| examined the differences of symptom distress, health locus
| of control, and coping resources for survivors who had and
| those who had not incurred a chronic physical disability
| following the acute phase of poliomyelitis. The Symptom
| Rating Test, the Multidimensional Health Locus of Control
| Scale, and the Coping Resources Inventory were used. No
| significant differences were found between disability groups
| concerning symptom distress, health locus of control, or
| coping resources. However, significant negative correlations
| were found between coping resources and both the quantity
| and severity of symptom distress. The differences found
| between perceived health locus of control and both coping
| resources and symptom distress were marginally significant.
| AUTHOR: Bell RW; Damrosch SP; Lenz ER
| TITLE: The polio survivor as expert: implications for
| rehabilitation nursing research.
| SOURCE: Rehabil Nurs (R25), 1994 Jul-Aug; 19 (4): 198-202
| ABSTRACT: Clients' personal experiences with illness or tragedy can
| uniquely qualify them as experts in many research-relevant
| content areas. Nurse researchers can benefit from this
| expertise by involving such clients in important decision-
| making aspects of research planning. The advantages of
| consulting with client-experts in the early and subsequent
| stages of research are discussed in this article, which uses
| as an example the way such consultation has worked in the
| development of a study of coping in polio survivors.
| Consultation with client-experts is especially appropriate
| when research involves sensitive issues or the measurement
| of subjects at vulnerable periods in their lives. It is
| advocated as a means of helping to ensure that participants
| are questioned in the most ethical, sensitive way possible
| and that the research will address the needs and concerns of
| the target population.
| AUTHOR: Diard C; Ravaud JF; Held JP
| ABSTRACT: For 10 yr, numerous studies have been conducted to try to
| explain the further deterioration of the sequelae from a
| previous, acute poliomyelitis. The different etiologic
| hypotheses, which have been put forward, have not been
| confirmed yet. A retrospective study has been completed by
| mailed questionnaires sent to 360 patients previously
| affected by acute polio; 248 polio survivors replied.
| Deterioration, as functional loss especially during walking
| and exertion, was reported by 77% of our respondents. Among
| the newly affected cases, 60% have given up or slowed down
| their socio-professional activities because of these new
| problems with their health. These functional losses,
| reported by patients, have been statistically related to
| several factors: the aging process, weight gain, female
| predominance and the involvement of abdominal muscles at a
| previously acute polio stage. The recently affected
| population has the same degree of disability (measured
| through the "Functional Independence Measure" (translated in
| French and self-administered)) as the nonaffected one. This
| fact suggests that the problems that are being experienced
| may be partly subjective.
| AUTHOR: Smith DW
| TITLE: Viewing polio survivors through violet-tinted glasses.
| SOURCE: NLN Publ (O3Z), 1994 Apr; (15-2610): 141-5
____________________________________________________________________
| AUTHOR: Agre JC; Rodriquez AA
TITLE: Neuromuscular function in polio survivors.
| SOURCE: Orthopedics (PCM), 1991 Dec; 14 (12): 1343-7
| ABSTRACT: Although there is no documented, objective evidence that
| symptomatic post-polio subjects are rapidly losing strength,
| they have a number of neuromuscular deficits related to a
| more severe poliomyelitis illness that may explain why they
| complain of problems with strength, endurance, and local
| muscle fatigue. Symptomatic post-polio subjects were
| hospitalized longer during the acute poliomyelitis,
| recovered more slowly, and had electromyographic evidence of
| greater loss of anterior horn cells. Additionally, recent
| assessment demonstrated that they were weaker, had a reduced
| work capacity, and recovered strength less readily after
| activity in the quadriceps muscles as compared to
| asymptomatic subjects. Of great clinical importance, rating
| of perceived exertion in the muscle during exercise was the
| same in symptomatic and asymptomatic post-polio and control
| subjects, indicating that symptomatic subjects have a
| mechanism to monitor local muscle fatigue that could be used
| to avoid exhaustion. A study of pacing (interspersing
| activity with rest breaks) showed that symptomatic subjects
| had less local muscle fatigue and greater strength recovery
| when they paced their activity than when they worked at a
| constant rate to exhaustion. We recommend that post-polio
| individuals pace their daily activity to avoid excessive
| fatigue.
|____________________________________________________________________
| AUTHOR: Scheer J; Luborsky ML
| TITLE: The cultural context of polio biographies.
| SOURCE: Orthopedics (PCM), 1991 Nov; 14 (11): 1173-81
ABSTRACT: Cultural contexts influence the ways individuals interpret
| and experience functional losses associated with post-polio
| sequelae. Using in-depth multiple interview case studies
| from two National Institute on Aging projects, the concept
| of "biographiesu is presented to place the individuals'
| polio-related experiences within the context of their lives.
| Two major cultural contexts shape the construction of polio
| biographies: normative life course expectations and
| developmental tasks; and traditions associated with polio
| recovery and rehabilitation. The authors identify key
| dimensions of personal concern among polio survivors that
| can be used as entrance points for effective clinical
| intervention and to promote treatment compliance.
|____________________________________________________________________
| AUTHOR: Bruno RL; Frick NM
| TITLE: The psychology of polio as prelude to post-polio sequelae:
| behavior modification and psychotherapy.
| SOURCE: Orthopedics (PCM), 1991 Nov; 14 (11): 1185-93
ABSTRACT: Even as the physical causes and treatments for post-polio
| sequelae (PPS) are being identified, psychological
ymptoms--
| chronic stress, anxiety, depression, and compulsive, Type A
| behavior--are becoming evident in polio survivors.
| Importantly, these symptoms are not only causing marked
| distress but are preventing patients from making the
| lifestyle changes necessary to treat their PPS. Neither
| clinicians nor polio survivors have paid sufficient
| attention to the acute polio experience, its conditioning of
| life-long patterns of behavior, its relationship to the
| development of PPS, and its effect on the ability of
| individuals to cope with and treat their new symptoms. We
| describe the acute polio and post-polio experiences on the
| basis of patient histories, relate the experience of polio
| to the development of compulsive, Type A behavior, link
| these behaviors to the physical and psychological symptoms
| reported in the National Post-Polio Surveys, and present a
| multimodal behavioral approach to treatment.
| AUTHOR: Maynard FM; Roller S
| TITLE: Recognizing typical coping styles of polio survivors can
| improve re-rehabilitation. A commentary.
| SOURCE: Am J Phys Med Rehabil (AJO), 1991 Apr; 70 (2): 70-2
|____________________________________________________________________
| AUTHOR: Smith DW
| TITLE: Polio and postpolio sequelae: the lived experience.
| SOURCE: Orthop Nurs (ORN), 1989 Sep-Oct; 8 (5): 24-8
| ABSTRACT: Many polio survivors who have been asymptomatic for a number
|
AUTHOR: Conrady LJ; Wish JR; Agre JC; Rodriquez AA; Sperling KB
| TITLE: Psychologic characteristics of polio survivors: a
| preliminary report.
| SOURCE: Arch Phys Med Rehabil (8BK), 1989 Jun; 70 (6): 458-63
| ABSTRACT: Ninety-three men and women with histories of polio were
| administered the Symptom Check List-90 Revised (SCL-90R),
| Psychosocial Adjustment to Illness Scale-Self Report (PAIS-
| SR), and a questionnaire about their polio histories. The
| SCL-90R and PAIS-SR are measures of emotional and
| psychosocial functioning. Two samples were used: a clinic
| sample (n = 71) and a postpolio support group sample (n =
| 22). Initial results for both on the SCL-90R and PAIS-SR
| indicated elevated scores on a number of subscales. SCL-90R
| subscale elevated scores for men included those for
| somatization, depression, anxiety, hostility, and phobia,
| whereas for women there were elevations on measures of
| somatization, depression, anxiety, and psychoticism.
| Elevations were found in the following subscales on the
AIS-
| SR (pooling men and women): health care orientation, social
| environment, and extended family relationships. Men scored
| slightly, but not significantly, higher than women in the
| SCL-90R except for the hostility subscale, in which the
| difference was significant (p less than 0.05). Symptom
| profiles indicated psychologic distress. Comparisons with
| variables associated with polio and its late effects (such
| as severity of initial polio, use of an iron lung during
| initial illness, number of involved limbs, etc) were not
| statistically significant.
|____________________________________________________________________
end of list
Professor Amy Zelmer Phone +61 79 30 9141
Faculty of Health Science Facsimile +61 79 30 9871
University of Central Queensland E-mail: a.zelmer@cqu.edu.au
Rockhampton MC, Qld 4702
AUSTRALIA
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Msg : 1209 Written : 07/11/95 14:00
From : BOLLENBACH@APOLLO.COMMNET.EDU Status : Pvt Rcd RcA
To : TOM MCKEEVER
Subj : Re: D.O.M.S.
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From: Eddie Bollenbach
To: Multiple recipients of list POLIO
Date: Tue, 11 Jul 1995 14:00:39 -0400
Subject: Re: D.O.M.S.
Elinor asked:
>Can any of the health professionals on the List explain the pathology of
>this? Why the 24-hr. cycle? Is there some kind of nerve or muscle fiber
>nutritional cycle that comes into play? Or build up of waste products that
>our muscles are not strong enough to squeeze into the body's cleaning-up
>systems? I know I am much healthier - stronger, less apt to illness and
ore
>alert - now that I've been on 3-times a week massage. What is the
>physiological basis for all this?
I experience this a lot too Elinor, and I've read and wondered about it.
Sometimes the soreness is not unlike the soreness an able bodied person
feels when he/she participates in an activity they are not conditioned for,
e.g. a person takes up jogging and after the first day is sore for a few
days. I've read of various explanations for this. One of them is muscle
damage e.g. microscopic tears that repair over a few days. There is also
a build up of lactic acid, which can damage muscle. This happens when there
is not enough oxygen in the muscle to allow for the activity. The muscle
continues to function w/o the oxygen by a different metabolic pathway,
producing lactic acid in the process, which drops the pH of the muscle.
One of the ways you can avoid some soreness is to stretch the muscles
before the activity and after the activity. Athletes do this all the
time. It prevents soreness by allowing for more elasticity in the muscles
so they will not be damaged as readily. It has helped me at times.
Sometimes when I swim and overdo it I feel the soreness 5 or 6 hours later.
But while I am swimming I felt great. It sometimes takes a day or so to
--- WILDMAIL!/WC v4.12
1:374/22.0)
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* Origin: SPACECON Med/Disab. BBS - Home of ye POST_POLIO ECHO.
|