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echo: fibrom
to: ED GREY
from: PHIL AHRENDT
date: 1995-09-05 20:51:00
subject: Re: Elevated CPK?

Greetings, All!!
  Hi Ed.  Are you the 'Ed' whose messages I recently saw in the InterNET
post-polio newsgroup?  I did some browsing of that newsgroup and was
appalled at some of the stuff I found there, and came looking to FIDO
for a moderated conference on PPS.
  A bit about myself.  I was struck with polio at the age of two years
in 1950.  My left arm and shoulder were affected by the virus.  I was
lucky in comparison to many.  As I approach fifty years old, I find
myself easily exhausted by work around the house, and strained muscles
seem to ache for days.  Although I seem to sleep all night, I almost
always awake feeling unrested.  A little research into PPS leads me to
believe that PPS could be the cause of my problems.
  What is this CPK  number that was being bandied about in one of your
post?  I am not familiar with that term in connection with PPS.
  Can you, or anyone else, confirm these symptoms?  Also, about three or
four years ago, I received some info from the GINI International Polio
Network.  A recent letter to them at their old address was returned.
Can anyone supply me with their current address?
  Hope to find some useful info on PPS here.  I'll look forward to your
response.
                                   \\\ PHIL  AHRENDT ///
                                    pahrendt@adsnet.com
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