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echo: abled
to: all
from: Alan Hess
date: 2008-06-20 16:52:02
subject: central pain syndrome

Is anyone else unlucky enough to have central pain sybdrome?  Some stroke
patients are unfortunate enough to get it.  I developed it a month after my
broken neck at C-5 and C-6 6/11/81 made me a quadriplegic.  I apparently
was unlucky enough to have one of the worst cases, in that the entire body,
rather than part of it, is affected.  It affected my entire body below
level of injury (top of chest and back, and hands), has constantly gotten
worse since, is more disabling than paralysis, and did/does not allow me to
have any kind of life, much as I wanted to.  The pains are driving me
crazy, especially my upper back (which affects my arm use) and my abdomen
(which affects eating and breathing.)  No meds have helped, which is
usually the case with central pain.  :-(

For those who do have it, or know someone who does, centralpain.com and
centralpain.org have good information.  *adh*

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