Hi Kevin!

>> Oh yeah, I've had it for 35 years now.. You couldn't tell by
>> looking at me, unless I'm having a darn bad day and limping

> 35 years hu... long time. ITS still got to be hard not knowing from day to
> day.

It can be rough, but you have to adjust how you live... If you want to live
.  One of the first things I did when I got this little beast was to have
a talk with Ron, my hubby, and the kids as time went on.. we established
some new 'rules' in the house.. "If it bothers you, YOU clean it
up" .

That worked until the kids were teenagers, then I had to add a little
addendum: "....unless you're a teenager, then YOU clean it"



That idea works for us still . Also important was keeping
active - so I couldn't dance so well anymore (and I was one of those people
who really really loved it ), but I could program computers :) 
Amazing the things one is able to accomplish when other doors are shut
closed on you.

> By the same token modern medicine has come a long way in 35 years and MS

I think that the most helpful thing for people with MS is having stress
reduced to a minimum.. One really does need to learn to just shake off the
'agitia', that people run into in everyday life.  That's probably just
generally true though :)

> folk do better now. Like CCSVI is something new, some MS folk say it's made a
> world of difference. My be medicine can do something for SCI too, I'm stable
> so anything new in that would be nothing for me.

Understand.  Glad things are stable!  How long have you had this? I expect
it wasn't easy for you.

>> if I'm not mistaken, they halted research when a couple
>> people died during the surgery or something.

> No... ouch. It needs research then!

Oh yes, indeed. IIRC, Buffalo University is again beginning such trials
now. Canada is also funding research I believe.

Take care,
Janis

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