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echo: survivor
to: Ardith Hinton
from: Mark Hofmann
date: 2012-04-02 18:24:54
subject: Re: Later this month.

AH>            He may have difficulty with toileting before the call of
AH> nature is
AH> urgent, though... particularly in view of his age.  The low muscle tone
AH> which
AH> often accompanies DS can be a contributing factor as can various
AH> medications.

With Hirschsprung's, the only way you can have a BM is either when the
pressure builds up enough behind the transition zone or enemas.  We have
had to use a combination of Miralax and enemas to keep things under
control.

AH>            A month or so has already gone by, and I'm 'way behind in
AH> answering
AH> my mail.  But please be assured we haven't forgotten you....  :-)

Me too.  :)  Thanks, I appreciate it.  

There is no update as of yet.  We are still doing our more agressive
approach to keep him managed and will then probably get another xray to see
where we stand.  

Hopefully, it will have gone down in size enough to perform the operation
with the least amount of bowel removed (only the section with no nerve
cells)

- Mark

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