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echo: survivor
to: Ardith Hinton
from: Mark Hofmann
date: 2014-06-07 11:58:40
subject: Re: Childhood Leukemia

AH> You may remember our daughter had ALL when she was three.
AH> 
AH> The bad news is that kids with Down's syndrome have a higher risk
AH> of developing leukemia than "typical" kids do.
AH> 
AH> The good news, however, is that ALL in young children is the
AH> easiest form of leukemia to cure... or so we were told years ago. And we
AH> heard from a number of medical professionals that *kids with DS* do
AH> particularly well. :-)

Yes, I remember your post on that subject.  How long was her treatment?  It
seems it averages between 2 1/2 to 3 1/2 years - girls typically get less
treatment.

Right - it seems kids with DS have a higher risk of getting ALL, but also
do particularly well is getting rid of it.

We are on month 3 right now - just started a new phase.  Depending on the
phase, there are some daily meds he has to take at home.  

I have entire care plan on printed out pieces of paper that outline the
phases and what happens on what day.  

Given everything that has happened, he is doing great and headed in the
right direction.  That is all we can ask for.

- Mark

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