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echo: survivor
to: All
from: Mark Hofmann
date: 2011-09-03 22:12:20
subject: New to the echo.

Just wanted to say hello to everyone in here, as I have just picked up this
echo from my hub.  I had seen it before, but was not totally clear on the
discussion until now.

As some already know, my youngest son (4 years old now) has Down Syndrome. 
He is only mildly effected from it, causing some delays.  It took him
alittle longer to walk (now he runs), drink from a cup, etc.  He is doing
all those things now, but his speech is still developing.  He knows how to
say many words and completely understands just about everything you say to
him.  He is also very godo at sports and has a good pitching arm.  We were
outside today playing catch.

He has been a real blessing and a wonderful child.  One thing we still need
to get through is he needs an operation for Hirschsprung's Disease.  It is
where a section (at the end) of the bowel lacks nerve cells and causes bad
constipation.  He is due for the operation later this year.  Otherwise, he
is completely healthy.  He did have an operation when he was first born
(duodenal atesia) which is where the connection between the stomach and
small instestine is blocked.  

He has a clean bill of health (including heart tests) otherwise.  Once we
get through this operation, he should be in much better shape.  No long
term issues.

Was wondering if anyone is familiar with any of those operations?

Looking forward to discussion with everyone.

- Mark
  
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