TIP: Click on subject to list as thread! ANSI
echo: survivor
to: Dallas Hinton
from: Mark Hofmann
date: 2011-09-05 14:05:38
subject: Re: New to the echo.

DH> Greetings!!  Hmm....is there something we should change in the
DH> description, perhaps?

I should have looked for the description early on.  I thought it was only
for people that survived some type of adversity (based on the echo tag). 
Once I found the description, it make more sense to me.  

DH> Excellent!! Our daughter (25) also has Down Syndrome. Not only is she
DH> doing
DH> well, she's just been awarded the George Klukas Achievement Award for
DH> personal growth in a person with Down Syndrome (via the Down Syndrome
DH> Research Foundation: www.dsrf.org). We're very proud of her!

That is great!  

DH> They're new to me, but like many parents of kids with DS, we've had our
DH> share of surgeries and panics! Our daughter had leukemia at age 3, a few
DH> other procedures, and then a major stroke at age 16. She's now Left side
DH> hemiplegic and uses a wheelchair, but still smiling! :-)

Thats the important thing.. :)

We have been working around our son's bowel issue since he was born. It is
difficult to get a procedure done when there is no "clear and present
danger at that moment", but this does need to be fixed.  The risk of
not doing it long term is worse.

Still working with him to increase his vocabulary.  That will keep him from
getting as frustrated at times when he acts out due to people not
understanding what he wants.  He knows more sign language than I do.  :)

- Mark

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