Mark Hofmann to All on 09-03-11 22:12 re: New to the echo.

 MH> Just wanted to say hello to everyone in here, as I have
 MH> just picked up this echo from my hub.  I had seen it
 MH> before, but was not totally clear on the discussion until
 MH> now.



 MH> As some already know, my youngest son (4 years old now) has Down
 MH> Syndrome. He is only mildly effected from it, causing some delays.
 MH> It took him alittle longer to walk (now he runs), drink
 MH> from a cup, etc.  He is doing all those things now, but his
 MH> speech is still developing.  He knows how to say many words
 MH> and completely understands just about everything you say to
 MH> him.  He is also very godo at sports and has a good
 MH> pitching arm.  We were outside today playing catch.

It sounds like you have a firm grasp on the blessings. 

 MH> He has been a real blessing and a wonderful child.  One thing we still
 MH> need to get through is he needs an operation for Hirschsprung's
 MH> Disease.  It is where a section (at the end) of the bowel
 MH> lacks nerve cells and causes bad constipation.  He is due
 MH> for the operation later this year.  Otherwise, he is
 MH> completely healthy.  He did have an operation when he was
 MH> first born (duodenal atesia) which is where the connection
 MH> between the stomach and small instestine is blocked.

Thank you for giving us the thumbnail of these conditions. For those new to
this echo, maybe it's time I reciprocate.

My oncology surgeon nicked a nerve that somehow affects my sciatic nerve
Twenty-years ago. Sitting and walking is a challenge. I was diagnosed with a
fibroid neuroma just a few years ago, (FINALLY) but we are not sure if it is on
a muscle nerve that impinges on my sciatic. Physical maladies, are only the
*beginning* of my issues.

 MH> He has a clean bill of health (including heart tests)
 MH> otherwise.  Once we get through this operation, he should
 MH> be in much better shape.  No long term issues.

 MH> Was wondering if anyone is familiar with any of those operations?

We are more so now. 

 MH> Looking forward to discussion with everyone.

Likewise... Often assistance can come from unexpected sources and in obtuse
directions.


... James
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