Hi Mary,
Forgive me if I make some unbearable newbie mistake, I'm very new at this!
Tried scanning the Post-Polio conf. because I have the darn stuff and am
looking for information. Your answer to Ann Cook was pretty close to the 
ark.
I have done a fair amount of writing in the medical field, including a book 
n
myasthenia gravis, which is a neurological disorder. There is a Bulbar
classification in MG too, and the Bulbar refers to the nerves that are
affected, in MG's case by the immune system, but in polio by the virus. The
areas controlled by the bulbar nerves are swallowing, facial movement, mouth,
tongue, vocal cords and diaphragm. So breathing, chewing, speech, swallowing
etc. can all be compromised if those nerves aren't working properly.
I'm wondering what, if any, therapies others have tried that have helped. 
've
had physio, which seems to have helped some with my quivery leg muscles, but
hasn't had any effect on shoulder and arm strength. My specialist (who has 
seen
all of three p.p patients) says he's heard there's a new drug being tested 
that
is supposed to help with the fatigue, but couldn't tell me any more than 
hat.
Any ideas?
Thanks and Cheers,
Deborah
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