NOTE: This Message was originally addressed to Tom Mckeever
      from Alan.mitchell@atlwin.com and was forwarded to you by Tom Mckeever
                           --------------------
Date:         Wed, 5 Apr 1995 11:03:00 -0500
From:         alan.mitchell@ATLWIN.COM
Organization: Atlanta Windows BBS * 404-516-0048 * Boardwatch TOP 100 #33
Subject:      APPA Newsletter 10_1 part
To:           Multiple recipients of list POLIO 
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APPA Video Library
The following videos are available in APPA's library
V001   Advocacy - Mark Johnson 3-5-88
V002   Bracing & Orthotics - Dr. Karan 5-1-93
V003   Bracing, Mobility & Seating - GINI'87
V004   Breathing - Dr. A. Alba 11-88
V005   Canine Companions
V006   Coping Successfully with late
effects GINI'89
V007   Coping in Society - Susan Daniels 1-29-88
V008   Coping with Stress/Stress Management GINI'87
V009   Coping
with Stress & Life Changes
V010   Environmental Factors - Dr. Rea
V011   Employment & Unemployment - GINI'87
V012   Adjusting to
Disability - 4-88 Dr. S. Stewart
V013   Exercise & Weight Control
- GINI'87
V014   What really limits us? GINI'89
V015   Fatigue -
GINI'87
V016   Fatigue, Underventilation & Weakness GINI'89
V017
Financial Planning - Rowley 6-89
V018   Home Health Aids - Maegar
'88
V019   Nat. Policy Impact on Independent Living 89
V020
Ethical Theory & Medical Decisions GINI'89
V021   Mutual
Decisions in Life - Death Situations GINI'89
V022   Muscle
Weakness GINI'87
V023   Networking & Research GINI'89
V024
Polio - PBS Nova
V025   Pain GINI'87
V026   Pain, Exercise &
Energy Conservation GINI'89
V027   Pain Management - Dr. Jann '88
V028   Dr. Karen Pape - 2-93 (3 copies)
V029   Post-Polio - Dr.
Peach 11-88
V030   Post-Polio - Dr. Peach 10-90
V031   Innovative
Solutions - Common Problems - Penn'89
V032   Physicians Journal
Update - Dr. Perry
V033   Dr. Perry - tape 1  2-88
V034   Dr.
Perry continued - tape 2
V035   Polio Awareness - Dr. Perry
V036
Positive Coping Skills - Phil Payne 8-88
V037   Post Polio
Syndrome - Vancouver
V038   Psychological Adjustment - GINI'89
V039   Ed Roberts 4-91
V040   Post Polio - Ed Snapp 1-91
V041
Post Polio Panel - Drs. Alba, Peach, Jann 11-88
V042   Social
Security Disability 6-88 Chas. Martin
V043   Social Security
Disability 7-91 Chas. Martin
V044   Accessibility Laws - Mark
Esinberg
V045   Post Polio Clinics 11-87
V046   Spouses of Post
Polios Panel 5-90
V047   Polio Survivor Profile - Jann '89
V048
Ventilators - Rich Bell 11-88
V049   Ventilation - GINI'89
V050
Ventilation, Sleep & Swallowing Problems GINI'89
V051-1
Exercise & PP/Agee, Growth Hormone & PP/Rudmar  Mestinon &
PP/Cashman, Comorbid-   ity/Halstead
V051-2 Living & Loving with PP/Roller, Psychological
Characteristics/Tate, Polio, Encephalitis, Stress & P/Bruno,
Research & Aging
V052   Late Effects Post Polio Chattanooga Conf.
V053   Unlocking Tomorrow - GPTV 11-93
V054   Research & Polio
Immunization - GINI'87
V055   RampVan
V056   Love Lift System
V057   Volkswagen Lifts
V058   Current PP Research, Dr. D. Leslie
6-94
V059   Psychology of Disability GINI'87
V060   Visit from
FDR 9-93
V061   Self Defense 11-93
V062   On the Move Again - GM
Mobility
V063   Then & Now PP Syndrome, IPP Conf. 94
V064
Status of Polio in World Today, Defining PP Prob-   lems,
Incidence & Prevalence of Post  Polio IPP Conf. 94
V065
Coordinating PP Treatment, The Battle with Brac-   ing, IPP Conf.
94
V066   PP Corrective Surgery, Recovery from Orthopedic Injury
IPP Conf. 94
V067   Surgery When Breathing is a Problem, New
Breathing & Swallowing Problems in Aging Polio Survivors, IPP 94
V068   Finding Your Personal Threshold -  Determining Prescribed
Activity,  IPP 94
V069   Choosing & Using Adaptive Equipment,
Ideas for Relaxing IPP Conf. 94
V070   Disability As a Life
Course,  Research Separating PP Syndrome from Aging IPP Conf. 94
V071   Living with Disability: What Works?  IPP Conf. 94
V072
Improving Cough & Decreasing Infection, Chang-ing Equipment as
Diagnosis Change IPP Conf.94
V073   Diaphragmatic Pacer, Living
at Home: Overcoming Obstacles IPP Conf. 94
V074   Challenges
Facing Individuals with Disabilities, IPP Conf. 94
V075   Face
Mask Show & Tell, IPP Conf. 94
V076   Post Polio Research: What's
Being Done & What Needs to be Done -  IPP Conf. 94
V077   Health
Care Reform, IPP Conf. 94
V078   Awareness through Movement -
Feldenkrais, T. Stogner Physical Therapy - 8-94
V079   Panel
Discussion of IPP Conf. 7-94
V080   Franklin D. Roosevelt - PBS
Special  l0/94   (4  1/2 hours)
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Update on Emory Clinic Post-Polio Services
   The Emory Polio Clinic has been providing a broad spectrum of
services to Polio survivors since 1988. Under the direction of
Dr. Brigitte Jann, the clinic opened with Dr. Jacqueline Perry
personally attending the first clinic day.
Looking back further in
history, we realize that APPA was created out of the combined
efforts of some of the most noteworthy individuals in the field
of medicine and outstanding members of the local community. Dr.
Perry is perhaps one of the foremost researchers on Poliomyelitis
and its short and long term consequences. She is also notably the
first female orthopedic surgeon in the United States and was the
celebrity speaker at the first APPA conference. This conference
was the result of the efforts of Webster Cash, Ph.D., and Linda
Priest, as well as other founding members who started the
association in 1986. With admirable perseverance, Dr. Cash and
Mr. Freeman, early presidents of the association, set out to
convince Emory to start a Polio clinic. Over the years, Dr. Jann
and her team have refined their skills and expanded the scope of
diagnostic and clinical services. To this end it has become
evident that additional specialty trained physicians are needed
in order to provide Polio survivors a choice of professionals and
quick availability of appointments. Drs. David Schiff and Anne
Allen are both American Board certified physiatrists with
particular expertise in managing musculoskeletal dysfunction.
These physicians have joined the Emory medical staff and offer an
array of most valuable interventions, more effectively addressing
many of the problems so common in the Polio population. For
further information and appointments, please contact the Emory
Center for Rehabilitation Medicine at 1441 Clifton Road, Atlanta,
Georgia 30322. (404) 712-5486.
__________  __  __________
MEDICAL ALERTS
From New Jersey Polio Network, Spring 1995
If you are on cholesterol lowering medication
such as Lopid< (gemfibrozil) or Mevacor< (lovastatin), you may be
experiencing enhanced Post-Polio symptoms. These drugs have been
known to cause muscle breakdown and kidney damage. If you
experience increased muscle tenderness or weakness, swallowing or
choking problems, or if your post-polio symptoms worsen more
rapidly while you are using these drugs, contact your physician
immediately about the possibility of a connection. Polio
survivors need to discuss with their doctor the possible risks of
using these drugs compared with the possible benefits. A history
of having had polio can be important in making this decision.
From TPSA (via Post Polio Partners), March 1995 If you face
surgery, it is very important to discuss with your physician,
specialist and anesthesiologist your history of polio and that
anesthesia is an issue of concern for you. Curare is sometimes
used during anesthesia to relax muscles. This allows using
smaller amount of the anesthetic. Curare has caused paralysis of
the breathing muscles in some cases of polio survivors.
From People's Medical Society Newsletter, December 1994 Newer,
more powerful cellular phones have been identified as the cause
of previously unexplained loss of control of electric wheelchairs
and scooters. Some electronic controls on these vehicles are
susceptible to radio wave emissions from cellular phones. If you
experience unexplainable starts, stops, or other phenomenon while
using a cellular phone, contact your manufacturer  to see if your
controls can be shielded. by Ronald L. Allen (adapted for Post-
Polio by S. Cook)
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ADA: Access to the Future
I recently wrote a letter to the editor of the Atlanta
Constitution after reading an article on some of the major
programs stated for federal cutbacks. They were listed in the
February 18, 1995 Constitution Local News Section, Legislature
`95. My comments are directed at pointing out why these programs
are investments, not entitlements. My goal was to have a voice in
reducing the possibility of having programs cut based on faulty
information and stating why access Is good business.
The letter was not published but I'd like to share parts of it. I
approached it from a business point of view, because our futures
depend on all people with disabilities being perceived as being
of benefit and having value in the community. Access is a civil
right. Following are topics I touched on.
Social Security Disability Income: As earned income, this is
money paid in to social security by people who had to retire
early because of disability or because of artificial barriers to
work. Individuals with Disabilities Act: Originally the Education
for the Handicapped Act of 1975, it allocates money for the
appropriate education of people with disabilities. It is an
Investment in the development of a large population of students.
It is needed primarily because, without it a percent of students
would be ignored and segregated by educators and business
partners when building schools and planning programs
Rehabilitation Services: The criteria for use of Rehab Services
money is that the client have work potential. The success of the
program is measured by people with disabilities generating
revenue and paying taxes. Vocational Education: Not everyone who
should be in the workforce needs or is capable of earning a
college degree, but everyone who is capable of working should
have available appropriate training...thus vocational ed. If a
large company has one CEO and 15,000 workers, this tells us that
there is great demand for workers, including ones with
disabilities, who will turn technical training into productive
work. Substance Abuse: Have we heard of Employee Assistance
programs? The work force, from CEO's to entry level front line
employees, have workers with substance abuse problems. The number
is especially high among the hospitality and tourism industry
because of the social and often glitzy nature of the work. (Much
of my Latta Enterprises marketing effort, until recently, has
been in the hospitality industry.) Mental Health: Again, refer to
EAP in reputable corporations. Mental health covers a wide range
of personal needs, both temporary and long term. Today's high
tech, down-sizing world has increased the recognition of stress
and depression. People who have the social status of being
employed and valued often have support services available, either
as part of a benefits package or available at affordable cost.
Historically, too many people with disabilities have been
perceived as not worthy, not qualified. So the doors to consumer
services and investments have been kicked shut repeatedly.
Research shows that when one is denied or deprived of anything
long enough, he or she may give up. At that point, life must turn
to survival methods. The Survival Programs for people with status
in the work force are called investments. Survival Programs for
people with disabilities are labeled a tax burden. Every person
in America has the right to be treated as an investment, not
perceived as a crippling burden. Footnote and Perspective: As
polio survivors, many of us have been and are highly productive
in the workforce...often not without pain and sheer tenacity. We
are also a vital part of the wider disabilities community. Our
voice can lend strength and encouragement to someone who might
otherwise give up. ADA: In future articles, I will discuss
various facets of The Americans with Disabilities Act (ADA) and
the benefit to everyone of accessibility. We all want to
participate in the community without going around artificial
barriers! Accessibility is good business. Here's to Life!
- l995  Marie B. Latta, M.Ed. for publication in the APPA
Newsletter.
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Reprint from the Wichita post polio newsletter
We received a number of requests for a reprint of this poem which
Dick Weir read at a recent APPA meeting
"I'm Mighty Fine, for the Shape I'm In"
There's nothing whatever the matter with me I look just as
healthy as I can be. I have PPS and some nameless disease My
sinuses drip, and I cough and I sneeze. But, ask how I feel, I
say with a grin, "I'm in mighty fine shape for the shape I'm in."
I toss and I tun almost every night And in the morning, Whew!
What a sight! My memory's not good and my hair's getting thin And
I'd really be sore without aspirin. But, don't get me wrong I
still say with a grin, "I'm in mighty fine shape for the shape
I'm in."
I think that my muscles are all out of whack, And Oh! What a pain
I have in my back. My eyesight's okay, but my hearing's not good
And my figure has fallen from where it once stood. But, I still
look at you and I say with a grin, "I'm in mighty fine shape for
the shape I'm in."
The cane that I use helps me stay on my feet, My chair and my
cart make "walking" a treat aCause my knees would buckle and then
I'd be sunk Why, someone might even think I was drunk. But I'm
happy I'm living, I say with a grin, "I'm in mighty fine shape
for the shape I'm in."
The moral this story has certainly told This body I'm in is not
just getting old. But when you ask me. "How do you feel?" You
don't really want to hear this whole boring spiel. So quietly
think it, then say with a grin, "I'm in mighty fine shape for the
shape I'm in."
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MEMBERSHIPS IN APPA
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Please continue to send me the APPA News. Please note and mark my
name according to the information I have checked below:
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__________  __  __________
In a continuing effort to bring you the absolute best of APPA,
several members volunteered to assist the editor in the
preparation, editing, and most importantly, writing original
articles and reporting on the APPA meetings.
This issue has a wonderful report on our March meeting written by
Bonnie Bonham. She captured the true essence of Ms. Lewis' talk.
Also in this issue is an article written by Marie Latta
discussing ADA from a business point of view. And Myrna
Whittington continues her column  Thoughts  which can be found on
Page 2. Our new staff, in addition to those mentioned, includes:
Diane Baggett George Bonham Sylvia Gray Bea Richardson Laura
Sherman Bob Urie Hale Williams We still have openings for those
interested in writing and editing. Alan Mitchell
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DUES ARE DUE
Please don't forget that 1995 dues are due starting in January.
APPA relies on the generosity of its members to continue to bring
you the programs, news-letters, socials, and other interesting and
informative opportunities each month. Fill out the membership
form on page 11 and mail it to us at the address shown. APPA News
Atlanta Post Polio Association Atlanta, Georgia 30309
(404) 350-7631
"Do or do not. There is no try." Yoda
Moving? Since the post office will not forward the newsletter,
please let us know of your new address (including all nine digits
of your ZIP code) so that we can continu
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