NOTE: This message was originally in conference "INTERNET - E-MAIL AREA"
      and was copied here by Tom Mckeever.
From: WalterBerk 
To: SJU Polio and Post Polio Syndrome List 
Date: Wed, 5 Jun 1996 21:52:18 -0400
Subject: CDC- acip June 19  meeting- Polio vaccine policy change  
 
Friends
        If you watched NBC-TV news tonight you would of seen Tom Salamone
with his child, David who is a victim of the SABIN 'live' ORAL POLIO VACCINE
(OPV) and NBC informing the public about the forthcoming CDC-acip meeting.
We have sent information to NBC and others and do hope that this is the
beginning of full coverage by the networks.  It might be worthwhile if
everyone reading this send an e-mail to the networks with an appeal to cover
the whole polio story. What is the e-mail addresses?
 
        Anyway Tom was at the last CDC-acip meeting and made a presentation
and we have asked him and he agreed to lead a group of other Sabin 'live'
polio victims in making presentions this time around.  We them contacted the
Pierson (TN) and Wilcox (KY) families and they consented to travel to the
meeting.  In addition,  we contacted the Atlanta PPSG and they will be
lending a hand and have also secured another Sabin Polio Victim Bosede Hicks
to speak.
 
        Anyone wishing to lend a financial hand to help these Sabin polio
victims travel expenses and other related expenses can do so by making and
sending a check to NYPPSG (mark it CDC mtg) POB 182 Howard Beach NY 11414.    
 
 
        For those who wish to read about what happened to the Pierson child
and Wilcox child because of the Sabin 'live' Polio Vaccination and related
information you can read it at
 
http://www5.ios.com:80/~w1066  for the Pierson Child in the Polio Vaccine
Booklet section 
http://www.eden/~via - for the Wilcox Child  
 
In case you do not have web access we are attaching the Pierson Child
situation report.
 
Keep in mind that these Sabin Polio victims by name are not available in the
public record.  They are all cleverly hidden by the gov't and attorneys
utilizing one method or another.  All the gov't says is that there are 8 -10
cases of vaccine-associated poliomyelitis a year.  What this means is
anyones guess.
 
Yet,  in our commissioned report we have been informed that there were in a
recent period of almost 5 yrs over 13,000 'events' which included 540 deaths
initiated through the use of the Sabin 'live' oral polio vaccine.  And, we
have been informed that these figures are on the low side since all 'events'
are not reported    
 
Gordon Pierson 
 
He is now a 3 year old who cannot move most of his body. He cannot swallow
or talk. He is fed
through a tube that enters his stomach through a hole in his side. Gordon
can turn his head a little
and he can move a finger on his right hand as though left there as an
afterthought, something
missed, by the polio virus that infected him through the Sabin oral 'live'
vaccine. Behind him at
home, medical equipment worth tens of thousands of dollars blinks its lights
as it checks his pulse
and his oxygen level, and keeps him breathing. 
 
Gordon will be tied to machinery for the rest of his life. 
Someone mom, dad or nurse must constantly suction his tracheotomy tubes and
his nose. They do
that every 20 minutes without fail. 
 
Gordon received his Sabin oral polio vaccine when he was 14 months. He now
has a younger
brother who will have his polio vaccination soon but it will not be the
Sabin oral live polio vaccine. 
 
The Attorney on the case is now requesting $400,000 per year to maintain
Gordon. He stated that
there are at least 2-3 cases like Gordon's every year and that the
government which accepts
liability in these cases has in the past agreed to pay over $320,000 in a
recent case. Our
Government as yet has not settled this case with Gordon. We have made
contact with Gordon's
parents and they have requested help. We have received a listing of items
Gordan now requires
and which it seems will not be forthcoming from our Government. 
 
The present needs for Gordon are Alpha Talker ($2790), Prone/Supine Stander
($2400), Health
Effects ($1532), Educational Computer System ($3200). We have sent them
funds from our
Special Assistance Fund but the amount is considerably below what is 
required. 
 
The Pierson's have also given us a copy of a letter from the March of Dimes
which
states "the March of Dimes no longer provides any direct financial assistance 
t
o
patients....". . 
 
Stay well  Write your letter to the CDC and e-mail the TV Stations
Walter Berk
Polio Connection
 
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